Ayla was an unhappy Munkin this eve so I posted her "mad/sad" face...note the deep groove in her upper palate caused by the intubation tubes. As she developes and grows it will eventually become less noticeable but will always remain.
The Swallow Study revealed that Ayla is aspirating when she swallows and refluxes; the valve to her lungs is not closing when she attempts to suck from a bottle. We have a meeting scheduled with the doctors to discuss tube feeding options- likely she will have a g-tube (stomach tube) surgically installed (oh yay- another surgery!) note the sarcasm....
The video below is of Miss Ayla alert and looking around- she is fun to watch when she's awake and interactive!
One unhappy little girl!
1 comment:
She is SO dang cute!
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